The Marfan Association Queensland (MAQ) is a volunteer run support group for people and families affected by Marfan syndrome and related conditions. We are a not-for-profit, charitable recipient group and donations to our organisation can be tax deductible. Our members come from all regions of Queensland and the northern areas of New South Wales.
|Support people and families affected by Marfan syndrome by sharing experiences, and information related to diagnosis, management and treatment|
|Raise awareness with the public and health care professionals as Marfan syndrome sometimes goes under-diagnosed and if so can lead to life-threatening health problems|
|Raise funds which are used directly for Marfan syndrome resources and research|
Marfan syndrome is an inherited condition affecting connective tissue throughout the body. It affects multiple systems including the heart, blood vessels, lungs, eyes and skeleton. The syndrome can be diagnosed in children, teenagers or adults. Approximately 1 in 5000 people are affected worldwide. The condition may be life threatening if not treated, however when managed successfully can result in a near normal life expectancy.
The main possible risks, should Marfan syndrome go undiagnosed, are aortic dissection (tearing of the main blood vessel running from the heart) and dislocation of the eye lens. There are many other health issues associated with Marfan syndrome which is a serious lifelong condition.
We are here for you. If we can help please contact us
For clinical support please contact the Clinical Nurse Consultant for Marfan syndrome at Prince Charles Hospital, Brisbane (public health service), Michael Reye Baldini (Monday, Wednesday, Fridays) on (07) 3139 7207 or anytime via email
Thank you for your support